About the foundation

GeneQuest Foundation

A Polish non-profit foundation. We are building knowledge bases, family support networks, and open research tools designed to shorten the path from diagnosis to treatment in rare genetic diseases. We start with fibrous dysplasia (FD/MAS) - a disease we face personally, and which became our motivation to act. The architecture is designed to extend, over time, to other rare diseases.

Legal data

Legal and registration status

Legal form

Non-profit foundation

Full name: Fundacja GeneQuest – Laboratories and Therapies for Genetic Diseases

KRS: 0001211461

Registration date: 12 December 2025

Registry court: District Court in Zielona Góra, 8th Commercial Division of the National Court Register

Registered office

Address and contact

Fundacja GeneQuest
ul. Bolesława Krzywoustego 1/7
65-039 Zielona Góra, Poland

E-mail: kontakt@genequest.org

Bank account (mBank): 70 1140 2004 0000 3002 8630 9056

Mission

Why we exist

GeneQuest is building AI methodology and tools that accelerate diagnostics and research in rare genetic diseases. We start with fibrous dysplasia (FD/MAS) because we have direct personal experience with the disease - we validate our own diagnostic journey first. From that experience, we create a map that can be applied to other rare diseases.

The name "GeneQuest" is deliberately broader than FD. The statute marks FD as a starting point, not a boundary.

Pillar 1 Family support: doctor database, diagnostic guidelines, meetings, research reports in Polish
Pillar 2 Community and education: partnerships with Polish universities, student grants, events
Pillar 3 Research and tools: Research Canvas (open-source), Live Guidelines, case studies, drug-candidate pipeline
Board

Who stands behind the foundation

Dariusz Miśkiewicz

Co-founder · President

Mathematician and software engineer (30 years in enterprise software, including PayPal, Siemens, Sage). Builds AI tools for rare-disease diagnostics. Completed PCR (November 2025) and bioinformatics (December 2025) courses at the University of Gdańsk.

Dorota Miśkiewicz

Co-founder · Board member

MSc in molecular biotechnology (metabolism, microbiology, cell membranes). Master's thesis: identifying the gene responsible for a genetic disease using PCR. Currently completing a postgraduate "Diagnostic Laboratory Specialist" programme. Co-shapes the foundation's medical agenda.

The founders currently run the foundation in the evenings and on weekends, alongside their day jobs. As grants come in, we plan to gradually scale the team and operational commitment to the foundation's projects.

Documents and transparency

Statute, reports, policies

GeneQuest is a non-profit organisation registered in the Polish National Court Register (KRS). Financial reports are filed in accordance with the Polish Foundations Act. Public documents are listed below.

  • Foundation statute - publication in progress. To request an early copy, write to kontakt@genequest.org.
  • 2025 NGO report - download PDF (reporting period 12.12.2025–31.12.2025). A full 2026 financial report will be available in spring 2027.
  • Privacy policy - privacy-policy (GDPR-compliant).
  • Conflict of interest policy - in preparation, to be published before the first major grant (Q2/Q3 2026).

OPP status (Public Benefit Organisation)

To receive 1.5% CIT donations, a foundation must hold OPP (Public Benefit Organisation) status. The formal requirement is at least 2 years of public-benefit activity. GeneQuest was registered on 12 December 2025, so we plan to file the OPP application at the end of 2027. Realistic access to 1.5% CIT for our foundation is the 2027 tax filing - spring 2028.

Until then, available support options: direct transfer and planned campaigns.